At the end of April 2012 Ittai suffered a major set back in his development.
He lost his baby sucking reflex, but he can’t chew and can’t properly swallow.
This means that he is not able to eat and has to be fed via feeding tube to survive.
Initially the doctors inserted a nasal tube which was very uncomfortable and very slow way to feed him. It was so uncomfortable that Ittai, despite being virtually quadriplegic, managed to pull it out several times a week. Each time he pulled it out meant another trip to the hospital to insert it back.
Finally on the 8th of June, thanks to Ittai’s gastroenterologist, who managed to schedule out of hours emergency gastrostomy surgery to insert a feeding tube directly into his stomach.
The operation was successful, however Ittai is one of a few that has an issue with accepting a foreign object in his abdomen and has a great difficulty in healing.
Since the operation the little feeding peg in his abdomen was changed a several time due to infection and inflammation of the area around it.
Today is nearly 6 month after the operation and it is still not healed properly. We hoping that a stem cell treatment will help Ittai eat normally or at least will help him to heal.